Jan and her Blog

Sunday, October 24, 2004

The Melancholy Child

The melancholy child is full of woe
or does it just.......seem so
Walking around with unfilled dreams
Struggling with thoughts
or so it seems
Ideas come
ideas go
I just don't know
Who speaks the thoughts that roam our head
Why us, of course, they can't be read
the rambling words goes round and round
the words speak ill, all thoughts of dread

The melancholy child is full of woe
or does it just....... seem so
Happiness is a state of mind
We just need some direction to find
the good thoughts, and ignore the bad
sadness comes
sadness goes
I just don't know

Who tells us if we're good or not
Why us, of course, we need repair
The words can lead us in the world
the words can lead us to despair
The melancholy child is full of woe
or does it just...... seem so

Who gives us guilt at every turn
Why us, of course, or so it seems
The rambling thoughts won't go away
Or is this just all a dream
A dream that never ends at day
Sleeping comes
Sleeping goes
I just don't know
The melancholy child is full of woe
or does it just ......seem so

Sleep my child, say your prayers
God will wake you when its time
to smile, to laugh, to do His work
to help the poor, to give your dime
Time will come
Time will go

The melancholy child full of woe?
No, ... hope is here.......that we know

Thursday, October 14, 2004

Short Story entitled "Katlit Finds a Friend'

"Why Mommy? Why am I so different?" Katlit asked. "Because God has a special place in His heart for you and did not want you to be like everyone else," Mommy said, smiling as she looked down at her precious daughter. "He has a special purpose for you, and we are going to have a great life adventure trying to figure out what that purpose is." Katlit didn't really understand, but she loved her mother so much, it didn't really matter.

School was starting today. A brand NEW school and Katlit's mother was very concerned that her daughter would be ridiculed by the other children. They have been through this before. In fact they changed schools because of it. The last principal had a difficult time adjusting to her illness. He didn't know how to talk to Katlit. My poor little girl, she didn't know what was going on. "Mommy, will the kids laugh and stare at me at the new school?" Katlit asked worriedly. "Does my new dress look good with my yellow skin? Maybe the kids won't notice" Katlit asked hoping I would give her the answer she wanted.

"Katlit, remember you are special," Mommy said, "All the other kids look alike. God wanted to find you quickly when He needs you." Katlit's mother was desperatly looking for just the right words. "You are His special angel. You know how color makes the world a beautiful place. "Don't all those flowers painted with their purples, yellows, and reds make you smile?" She saw her daughter finally smile back. "God wanted to smile when He looked down at you." "Katlit, you, my daughter, is God's own bright light. "He sees you with your bright yellow skin admist all the chaos in the world. That makes God smile." Katlit feeled so much better after that. Her Mommy always helped her feel better.

Daddy went to work after giving Katlit a hug and kiss. He told her to have fun in her new school and we would see her when she came home. Katlit loved her Daddy. He was so big and strong, and he always new exactly what she needed. She was a lucky little girl. She had a Mommy and Daddy that loved her no matter what she looked like. She had a big brother that made fun of her sometimes, but in a loving way. Most of all she knew that God made her his special angel that so He could see in the dark. Life was good. Except she knew she will have to make that trip up the school stairs, walk down the hall, and hear the laughter and see the stares of all the children. Katlit said to herself, I have nothing to fear. Jesus is walking with me. He is right by my side holding my hand. The kids won't dare laugh now. Katlit was pondering over the things she wanted to happen today. I just hope I can find a nice friend. I would love to have a best friend. We would talk and share secrets and spend the night, but I know I can't. Those darn blue lights. I can't do anything I want. Daddy gets so sad when I go under the lights at night. I can see it in his eyes. I hate the lights, but I know I will die if I don't have them. I just want to have some friends over and play dolls,and giggle all night. Oh well, maybe some day.

Katlit walked into her new classroom. The kids stared; some whispered to other kids. But, I didn't hear any sounds. No laughing! Maybe these were special children too and God warned them to be nice to me. Mommy held my hand, and walked me over to meet the teacher. Mommy said, "Katlit, this is Miss Sunshine." She is going to be your new 3rd grade teacher this year." Miss Sunshine was already aware of Katlit's rare disease giving her skin a yellowish tint. Hi, Miss Sunshine. You have a yellow dress on that matches me!" Miss Sunshine looked down at Katlit. She kneeled down so she was on the same level. "Katlit, my that is such a pretty name. I love the color of your dress! It makes your skin just glisten. You are very beautiful! Come, sit down in the front row by Nicole. She will show you around and introduce you to all my special children." Katlit let go of her mother's hand. She kissed her mother goodbye and told her not to worry. She had a new friend. With that, Katlit sat down next to Nicole and felt very much at home with her new friend in her new school. Katlit's mother left the room feeling better than she had in years. Maybe this time it will be different, she thought, as she went down the steps to her car. She said a silent prayer, Thank you Jesus for giving Katlit a friend.

At the dinner table, Katlit was so excited as she was telling her daddy all about her day at her new school. Her brother was making his usual teasing remarks. Katlit just ignored him because she would not let anything ruin her day. "Quess what Daddy? I have a wonderful teacher, and, I have a best friend. Her name is Nicole and she is special too." "All of God's children are special Katlit, but what makes Nicole EXTRA special?", daddy asked. Katlit was all too happy to answer that question. "She has a hard time reading. The words are all mixed up." Daddy just smiled, because he knew what was coming next. After all, it has been eight years of holding and loving this child. He knew her so well. He had the most beautiful and caring daughter. She wanted to help anyone who was in need. He loved her so much and was so proud of how she handled her illness that sometimes he felt his heart was going to come right out of his chest! Katlit suggested, "I thought maybe Nicole could come over here and while I am under the lights, I could help Nicole with her reading!" You don't think she will be scared of my blue lights do you daddy?," looking up almost in tears. Katlit's mommy and daddy just looked at one another. They both remembered many years of difficult times and now finally knew this was going to be a great adventure for their daughter. She will have a best friend to giggle with, share secrets and finally have those overnight slumber parties. Daddy took Katlit in his arms and said "Honey, she has you, as HER best friend. Together, you will both conquer the world, and neither one of you will ever have to be embarrased or afraid of anything again!" With that, Katlit slid off her chair, kissed her mommy and daddy and went to use the phone to invite her very own best friend to her house.

SKYLAR UPDATE

THIS IS AN UPDATE FROM TRACY, SKYLAR'S MOTHER.


Skylar had her GI appt yesterday. She is still not gaining weight, actually she lost 2 ounces since she left the hospital. They have increased her diet to 27 kcal/ounce. The liver biopsy came back normal. Her doctor feels she has a metabolic disease, but one which does not originate in the liver. He has requested that we see her geneticist again to see what she says. He wants to see her again in two months, but wants her weighed every 2 weeks. If she is not gaining any weight he wants to know sooner. He says he will talk with her pulmonologist after her appt. on the 25. After which they may decide to do a PH study. So, we must wait again. We should be hearing soon about a consult to do an evaluation on her motor skills, so we can start PT before she gets too far behind. Her swallow study was this morning, and that went fine with no indications of aspiration. She is such a good baby and handles all of this so well. I will update again soon and will be putting some pictures up after I get them downloaded.

Wednesday, October 13, 2004

VOTE

The debates are over. Thank goodness! The candidates are out of the gate. Now it is up to US! It will not matter who you want in office if you don't vote. Every person will make a difference in this election. This is the most important election we have faced. Our security, our economy, our very lives will depend on who is in the White House. If you need to register, REGISTER; if you need an absentee ballot, GET ONE; if you need a ride to the voting booth, CALL SOMEONE. JUST GET OUT AND VOTE. Pray for our country, pray for our children, and pray that GOD's will be done.
Please Pray with me:

Lord,
This is such an important time in our lives. We know you have control and you gave us free will to make our own choices. Lord, we thank you for all the blessings you have bestowed on America. We know it is our responsibilty to help people and countries less fortunate than us. Lord, give us the wisdom to vote for the right man. Father, God, I pray that all Americans go out and use the freedom we have treasured so much in this country, the freedome that brave men and women have died for. I pray each and every registered voter will see the importance of their single vote and GET OUT AND VOTE ON NOVEMBER 2. I know Father God, you will be watching over your Blessed American. God bless us all.
Love, One of your children.

Monday, October 11, 2004

Blue Monday

Today is Monday, (maybe that is why this text is in blue). I am beginning to dread Monday's. I don't know why. It might be that I need more time to get things done from the week-end. It's like I need that "extra" day. "Blue Monday".

Monday's a day
a day in a week
what makes this different?
different from what?
What was the question?
What day is it?
Oh! Monday, that's right
I need to concentrate
Can't we skip Monday?
Then Tuesday will be bad
Tuesday will be blue
Oh, NO, what a dilemma
What will I do?
Should I skip Tuesday too?
I'm running out of days
I'm running out time
I running out of sense
What will I do?
I know, I will go to sleep
I know that will help
I'll wake up tomorrow
And Monday will be gone

Until next weekkkkkkkkkk.


Anyone else feel this way?




Saturday, October 09, 2004

HAPPY BIRTHDAY JAMES

Happy Birthday, James

It sure doesn't seem like 34 years ago, you were just a babe in my arms. You are all grown up now and pursued your dream to become a fireman. You have a great family and you should be very proud of yourself.
Love always,
Mom

Wednesday, October 06, 2004

DID YOU EVER?

Did you ever just lay on the ground and look up at the sky while watching the clouds drift by? Wouldn't that be great if we could find the time to do just that! It sure seems so long ago when I did that as a child. Alone with just my thoughts in my own little world just floating away on the beautiful, soft clouds. Not knowing where they would take me, but being so relaxed that nothing mattered.

Now when I take that extra moment and peer upwards, it takes me back to those days of innocence. Nights filled with the Beaver and Ozzie and Harriet. On TV the mothers didn't work and were always well groomed in their dresses and pearls. It was a good time to watch the clouds. The word Terrorists were not even in my vocabulary. Chopping off heads happened only in scary movies. Flying into buildings was science fiction. After all, how could that possibly happen. What was troubling me back in those days seemed like the end of the world for me. This generation knows all too well how close the "end of the world" could really be.

So when you are rushed, and when your are stressed; look up. Take five minutes and just stare. Just think; Just dream. Call upon Jesus and when it is time to go home, He will give you tickets for the Cloud Express. It will be a non-stop flight to Paradise. God's mercy alone will be your ticket at no cost to you. Someone already paid for our expenses.

Just look up! What do you see? What is your dream? Pick your cloud and hop on before it passes you by.

Just remember: look up and dream.
Look up
Look up
Look up
I'm coming Sweet Jesus
Save me a seat!

Tuesday, October 05, 2004

Creation vs.Evolution

Here is a question.

1. If everything has a cause and effect, then what (or who) was the cause of the beginning of the universe?

Thought for the day


2. DNA is instructions for a cell. Who wrote the instructions. Instructions can not be made by chance. (ripples in the sand after the tide are by chance, but if you see the message "Paul loves Mary" in the sand, that is not by chance. It would have to be written by an intelligent being. Just like a Programmer has to write the instructions for the program.


Thoughts Please

Sunday, October 03, 2004

Skylar Update

Skylar came thru her surgery ok. They took 2 biophies and one was sent to UCSF to analyze. She was in pain the 1st day, but yesterday she was a lot better. Hopefully, she will come home today. I will write more later.